Leukodystrophies are rare diseases that affect the brain and spinal cord, leading to extremely severe handicaps and early death in both children and adults.
The families concerned are brought together by ELA International, which groups together 7 ELA associations in Europe (Belgium, France, Germany, Italy, Luxembourg, Spain and Switzerland). ELA’s strength lies above all in the boundless commitment of parents who want to save their children.
Since 1992, ELA has played an active part in every stage of leukodystrophy research. This has enabled researchers to develop the first innovative treatments. These results are an enormous source of hope for all the children who are still without one.
That’s why we need to step up our support for researchers, while accompanying sufferers and their families on a daily basis.
To achieve this, ELA must find new resources. To this end, we have devised “Watches for ELA”, a charity sale of unique watches created by prestigious watchmaking houses.
This event was created thanks to the gracious support of Christie’s-Geneva and its directors, to the excellence and generosity of the watchmaking houses, to Zinédine Zidane, ELA’s emblematic ambassador, and to the friendship and exceptional involvement of François-Henri Pinault.
Our sole aim is to unite the exceptional talent of watchmakers and the generous passion of collectors, with the hope generated by medical research, to save the lives of children who just want to grow up.
Thank you for giving ELA the means to fulfill its promising commitments to patients, their families and researchers.
ELA’s research is supervised by two independent international bodies: a Scientific Council and an Ethics Committee.
The aim is to give international researchers the means to act, to better understand the mechanisms of the disease and its progression, before including patients in clinical trials aimed at improving their quality of life, halting the progression of the disease, or better still, preventing it from occurring in the first place.
ELA invests both in fundamental research into leukodystrophies and in discovering treatments: 51.9 million euros corresponding to the funding of 601 programmes, making ELA the leading funder of research into leukodystrophies.
Each ELA association organises its social support according to its priorities and resources. ELA International supports all initiatives aimed at bringing families together and providing them with relief.
If you would prefer to send a letter, please write to the following address:
ELA International – 90 B Route d’Arlon – L-1150 Luxembourg
